References from WPC2019
New sites and organizations (at least to me) that I think will be useful to my friends, support group members and others with Parkinson’s Disease
When Life Gives You Parkinson’s Get Larry’s Podcast Here
Larry Gifford has developed an excellent podcast about Living with Parkinson’s. He did a special series for the Conference but has I believe 17 episodes available for download
Perseverance by Tim Hague Order book link
Perseverance by Tim Hague. This book, written by a person with Parkinson’s who won The Amazing Race Canada has received good reviews as a motivational book.
National Parkinson’s Foundation Link to their site
National Parkinson’s Foundation. This is the group sponsors Moving Day, an event that I participate in for both their Rochester and Boca Raton offices. After a merger of two groups a few years ago, I believe that they are the biggest group of this kind for Parkinson’s Support and Education. that U of Rochester Neurology affiliates with and they have an office in Rochester. They have lots of patient literature and programs. They are involved with advocacy and the have a Q&A board staffed by doctors and a support group forum. (note, no s in their name)
PMD Alliance . Their mission is to provide opportunities for people with movement disorders to live better, learn and network with similarly afflicted people.
American Parkinson Disease Association Website
American Parkinson Disease Association This group has a lot of website information for newly diagnosed and supports local support groups.
Michael J Fox Foundation Website
Michael J Fox. Fund raises and supports research to find a cure. Also hosts educational webinars and educational material. Has a listing of available clinical trials. www.michaeljfox.org