Welcome to my thoughts on living with Parkinson’s Disease

• Gloria’s Support Group Presentations
• World Parkinson Congress 2019 Review

• The year 2021 is almost doneAugust 30, 2021
  While I’d love to say “time flies when you are having fun.”, that’s not the reason that I haven’t done a blog post since April 2020.   I’ve written many  articles in my head, they just don’t get down on paper.  There are  a variety of reasons why including Parkinsons.  In general, I’d say my Parkinson’s… Read more: The year 2021 is almost done
• My Short Pitch for Aware in Care. (Dealing with the dangers of Parkinson’s and hospitalization.)September 30, 2020
• Living Well – Parkinson's Disease is Your Partner for LifeFebruary 25, 2020
  I thought I wrote this blog entry Saturday and then read it Sunday morning and realized it was not what I wanted to write at all. Then my internet went down , so now I am re-writing it hopefully as I intended. This too is part of Parkinson’s, the part people don’t really know about… Read more: Living Well – Parkinson's Disease is Your Partner for Life
• Parkinson IQ and YOUJanuary 15, 2020
  On January 11, 2020 Ron and I attended a Parkinson’s Symposium sponsored by the Michael J Fox Foundation, called Parkinson’s IQ and YOU. These sessions are being held throughout the country and started last fall, I believe this was the third one. The next one is March 7, 2020 at the Diplomat Hotel in Hollywood,… Read more: Parkinson IQ and YOU
• End of Year SummaryDecember 15, 2019
  It’s been an interesting year.  On one hand I say that my life is in a state of equilibrium at the moment but I continue to be frustrated with my body and it’s aches and pains.  I guess in one respect things are good – my friends have stiffness, aches and pain and at least… Read more: End of Year Summary
• Night and DaySeptember 1, 2019
  In the past few entries , I’ve mentioned that I’m feeling better than I have in years.   So I went back to my notes.  I’m definitely better than I was before the Mediterranean Cruise in 2014 when the back pain increased.  Part of it is just healing of the back over time, but a lot… Read more: Night and Day
• What a difference a week makesAugust 30, 2019
  When we are at our family retreat, I attend a 9am yoga class. It’s close so I usually drive.  Two weeks ago, as I pulled out, I asked myself if I took my medicine and I doubted myself but thought I did. I was okay through the class but a little stiff.  Sure enough I… Read more: What a difference a week makes
• Advocating for Parkinson’s CareAugust 3, 2019
  A few weeks ago I had the opportunity to attend a training session on the general topic of what happens when a person with Parkinson’s is hospitalized.  I’ve encouraged people to order these Aware in Care packages for years, but now  I have an even better understanding of WHY we want these bags and how… Read more: Advocating for Parkinson’s Care
• Update on how I’m living with Parkinson’s DiseaseAugust 3, 2019
  We all know that Parkinson’s is a degenerative disease.  But my Movement Disorder Specialist says that if it starts slow, it usually stays at a slow rate of change and visa versa.  In other words the younger you develop this the longer you are going to have to live with it.   He also says you… Read more: Update on how I’m living with Parkinson’s Disease
• ReferencesJune 25, 2019
  Websites related to people I met and services I might want to reference again.
• A Typical Day with Parkinson’sApril 30, 2019
  Re-reading my April 29 post, it doesn’t really describe how I feel about “Living with Parkinsons” at this point. The bottom line is that it frustrating and scary. It’s frustrating in that it consumes my thoughts a huge percentage of the time.
• Living with Parkinson’s April 2019April 28, 2019
  This is a long overdue update on my “journey with Parkinson’s.” As previously mentioned every case is different. Dr. Barbano stated that progression is usually linear but at the moment my slope is approaching zero and in reality I’m doing much better than definitely a year and up to several years ago in the motor skills, although probably a little (but not much) worse on non-motor symptoms.
• My StoryApril 9, 2019
  I have had a movement disorder issue since mid-2004. It was ultimately diagnosed as Parkinson’s Disease. Parkinson’s Disease is diagnosed by observation of symptoms and their reaction to dopamine. While most often thought of as tremors or jerky movement, in general it is a slowing of the body due to lack of dopamine and various… Read more: My Story
• A New Normal for the New YearDecember 12, 2018
  Holiday greetings.   Another year.  I’ve been dealing with this ever changing movement issue going on 15 years, since 2004 and it’s almost 2019.   I know people have it worse but   the constant pains and probably more exactly, the uncertainty of what’s next is a constant fear. Yes, I’m feeling better and people say I look… Read more: A New Normal for the New Year